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NICE, NHS England & the drug manufacturer BioMarin need to urgently reach an agreement to ensure children like Nicole & Jessica can access it without further delay. You can view the full report 28 seconds on BBC iplayer - tinyurl.com/y2sy6c53
Yesterday I spoke to @BBCLN about #BattenDisease & my constituents, @njrchfoundation - the Rich family from Throckley. A life saving treatment, Brineura, is available in many countries in Europe & around the world, including Wales, but not currently in England. https://t.co/XuJDNCRTDE